Lexi's Letter used in training of future doctors and nurses

A letter written by a teenage girl from Leicester who died in hospital is being used to train future doctors and nurses around the world. Lexi Johnson, who was born with a rare immune deficiency, was approved for a stem‑cell transplant when she was 12 and endured long periods of isolated hospital care supported by her parents. She died in 2025 aged 14 due to complications from the transplant. During her time in hospital, Lexi wrote a letter full of tips for medical staff working with young people. Now it is being used by several hospital trusts in England, as well as Tasmania and Canada. Her mother Liz said her daughter "wanted to use her voice to make a difference". Known as Lexi's Letter, the missive urges healthcare professionals to clearly explain their role, speak directly to the young patient, ask what they prefer to be called and check how they want to receive any difficult information. The letter has also been made into a short animation, voiced by her younger sister, Ella. Lexi died on 3 September 2025, but watched the first half of the animation the day before she died and said: "That's good." Her parents, Liz and Andy, both studied at the University of Leicester and visi